News
Meeting of the Parliamentary Group for Rare Diseases...
On 2 December, lawyer Katarzyna Czyżewska took part in a meeting of the Parliamentary Group for Rare Diseases, the Parliamentary Group for Children and the Parliamentary Group for SMA.
The meeting was an opportunity to discuss the most important challenges facing patients with rare diseases, as well as the needs in the area of care for children and people with SMA.
At the invitation of the Group, Katarzyna Czyżewska gave a presentation on the state of legislation in the area of rare diseases in Poland, drawing attention to key barriers and necessary directions for change.
We would like to thank you for the opportunity to participate in the discussion and exchange experiences for the improvement of systemic solutions for patients.
Link to the broadcast: